Addie getting suctioned. She grabbed the suction and held it in her mouth and sucked on it! Maybe she's starting to get some teeth?!?!
Sleeping the day away...
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... all about our crazy, wonderful, "perfect" little life
Our Family
Drew Dylan
Addison Malyn
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Our Story
I first began this blog as a way to share pictures and experiences with our family and friends who live far away. I wanted to be sure that everyone could be a part of our lives as Drew grew up. On March 29th , 2008, we were blessed with a beautiful baby girl, Addison. At only 10 days old, Addie was air-vacced to Phoenix and diagnosed with Shone's Syndrome. This is a Congenital Heart Defect which consists of four different and complex complications including: Moderate Hypoplastic Left Heart, Mitral Valve Stenosis, Coarctation of the Aorta and a Ventricular Septal Defect. Addie underwent her first surgery, the new Hybrid Procedure, on April 19th and her second surgery on August 19th. They are planning on Addison having another surgery during the first 2 weeks in September. If all goes as planned, we will be able to go home after that and have a year and a half with her until her next (and hopefully final) surgery at the age of two. So now, this blog has an additional purpose, to take you all on our journey through Addison's progress and give you a chance to watch Drew grow up way too fast!
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Blog Archive
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2008
(73)
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September
(23)
- Our Little Princess
- Fun Times with Drew
- Addie's Up and Downs
- A Wagon Ride
- Addie's First Article in The Sun
- In the Newspaper....
- Addie's First Surgery
- Addie's Second Surgery
- Lots of Pictures
- Drew at the Children's Museum
- Addison Looking Great!!!
- What a day....
- Finally Sleeping
- An Outing with Drew
- Another Day....
- A Day in the Life of Addison
- Playing Hide and Seek
- Our "Vacation" Home
- A little more progress...
- Another Great Day
- Sleeping Beauty
- Getting Stronger Everyday
- Extubation: Day 3.... Getting Rid of Some Lines
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September
(23)
Cut-A- Thon for Addison
She really is soo sweet and beautiful...
ReplyDeleteI just read your last journal about the fever and havn't even heard anything about that! I sure hope that no news was good news and that nothing came back on the cultures. I know how frusterating it would be to delay surgery for her AGAIN. Now that I think about it, I didn't really see you guys all weekend, so when I get in today I'll come stop by. I woke up and immediatley thought of her cath today and prayed for her. I know today is the start of a big week for her so we have been praying. I feel like since we have been going through this together she is so dear to me, and you guys have been such good examples and friends to us. I worry about what goes on with her so much! We're so grateful to have met you guys.
I'll come see how things went later...hopefully they went!