To All of Our Wonderful Friends and Family,
Please say an extra prayer for Baby Ethan and his family today. Early this morning, Ethan lost his battle with HLHS, but won the hearts of many during his 6 months stay on this Earth. We are better people because he, and his family, have enriched our lives. Ethan is no longer in pain... He is a hero and will be missed tremendously.
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... all about our crazy, wonderful, "perfect" little life
Our Family
Drew Dylan
Addison Malyn
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March for Babies: Our Family Site
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Our Story
I first began this blog as a way to share pictures and experiences with our family and friends who live far away. I wanted to be sure that everyone could be a part of our lives as Drew grew up. On March 29th , 2008, we were blessed with a beautiful baby girl, Addison. At only 10 days old, Addie was air-vacced to Phoenix and diagnosed with Shone's Syndrome. This is a Congenital Heart Defect which consists of four different and complex complications including: Moderate Hypoplastic Left Heart, Mitral Valve Stenosis, Coarctation of the Aorta and a Ventricular Septal Defect. Addie underwent her first surgery, the new Hybrid Procedure, on April 19th and her second surgery on August 19th. They are planning on Addison having another surgery during the first 2 weeks in September. If all goes as planned, we will be able to go home after that and have a year and a half with her until her next (and hopefully final) surgery at the age of two. So now, this blog has an additional purpose, to take you all on our journey through Addison's progress and give you a chance to watch Drew grow up way too fast!
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Blog Archive
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2009
(47)
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August
(16)
- Drew's Growing up WAY TOO FAST
- D-backs game!
- Learning to Dance in the Rain....
- Prayers...
- GRATEFUL
- Addie's Battle with the Box of Cheez-Its
- Gotta Love these Kids....
- Just Some Random Photos!
- Addie's First Year
- High Chairs and Bathtime and Choneys (sp)...oh my!
- First of all, I have to say that I just walked out...
- Don't Try This!
- Some Pics and a D-backs Fundraiser
- Gotta LOVE the G-tube
- Home and Tube Free
- We're Home, All is Good, and a Thank You
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August
(16)
Cut-A- Thon for Addison
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